Last week I had a CT scan and appointment with my oncologist at Hopkins. Good news - my tumor has shrunk slightly and there are no new ones, the four rounds of chemo in September and October seem to have been effective. The bad news is that he suggested that I do 8-12 more rounds, though he did recommend a 20% lower dose. But ugh, nevertheless.
So in the new tradition of shopping for a "yes", I went to see my local oncologist, Dr. Wadlow, who oversees my chemo treatments. Dr. Wadlow, as I have mentioned before is heir to Drs. Ben Casey and Kildaire in charisma and compassion, so I was hoping for a more palatable recommendation. And I got it; he suggested that I move to oral chemotherapy, with a daily dose of Xeloda, which is one of the four nasty concoctions that I've been taking in the previous chemo sessions. He is concerned that the Folfirinox (the acronym for all four drugs) treatments have been taking too much of a toll on my body in terms of neuropathy, bone marrow depletion, etc, not to mention making me a depressed and crabby old fart.
So, on Monday I will start with Xeloda. It has possible side effects, too: fatigue, mouth sores, hand irritation, and diarrhea, to name just a few. But still it should be much easier than Folfirinox. So, I am relieved and feeling positive about going forward. In fact I feel better today than I have since August. With luck the side effects will be minimal, and I can manage this indefinitely. Stay tuned, and a Happy Thanksgiving to you all! We have much to be thankful for.
Thursday, November 9, 2017
Saturday, November 4, 2017
Body Chemistry
A few weeks ago I started chemotherapy again for the second
time, the first being in 2015 when I underwent twelve rounds to treat
pancreatic cancer. It went about as I expected. During the 48 hours of
infusions and the following two days, I felt heavily drugged and crushingly
fatigued, and my stomach churned with nausea and diarrhea. I spent most of five
days in bed. Since the fifth day I have gradually gotten better, though my
energy level is still low and I continue to have stomach discomfort. I feel
pretty good now, nine days since the infusions ended, so I was recovered enough
to do it all again the following Monday. But chemotherapy certainly hasn’t
gotten any easier this second time around.
I’ve been thinking a lot about the chemicals in our bodies
this week, and coincidentally I read a couple of interesting articles that
further stimulated my thoughts. I was trying to put all of it together into a
coherent essay, but I’ve decided to not worry about coherency and just start writing.
About three days into chemo I started taking OxyContin
again. I took Oxy throughout chemotherapy in my year of pancreatic cancer; the pancreatic
tumors gave me a unique searing pain in my upper abdomen, and Oxy really helped
with that as well as simply making me feel better. I found pretty quickly that
if I missed a dose, not only was the pain more troubling, but also I felt
headachy, lethargic and depressed. In other words, I became dependent on the
drug pretty quickly. Back in 2015 I was concerned about how I would get off of
it when the time came, but at that point I was a lot more focused on other
things like whether I would be alive long enough to care. Eventually I was
taking 30 milligrams a day, a relatively small dose. And about a month after
surgery in the winter 2016, I was able to stop taking Oxy without too much
difficulty, I just dealt with a few days of sleeping poorly and feeling
irritable.
This time around I am not having any cancer-related pain,
but I was feeling really drained and depressed
last week and experiencing the queasiness and cramping in my gut, so I
tried Oxy anyway. I immediately felt much better; the gut clenching and nausea
stopped, and I felt more alert and vital. So I’ve continued to take it, and it
really helps, and I can feel the difference when it wears off. I still worry
about becoming addicted, but let me tell you, when you feel lousy and depressed
and you know there is a little white pill upstairs on the night table that will
fix it, you don’t second guess for very long.
One of the things I noticed the first time I went through
chemo was that the chemicals suppressed my testosterone, and I observed several
interesting effects. Of course, I also thought I might be dying, so it’s not very
clear what was causing what. But, I saw that I became a lot more emotional; I
felt more affection toward the people around me and my world. I also felt more
sadness, and I reacted more to events in the world. I stopped watching movies
and TV shows, they affected me more and I couldn’t stop the images from
flooding my brain. I also became more passive and agreeable, I couldn’t stand
any sort of conflict. With my new passivity, I remember thinking on many
occasions, why can’t we all just get along; there is so much to be grateful
for, what is there to fight about?
As I have written before, the year of cancer was emotionally
overwhelming. I go back and read my blogs and it brings me to tears still.
After surgery in January of 2016 I went through a period of
depression, which I learned is almost a given after what I had gone through, so
I tried taking Zoloft for a while to address it. I didn’t like it, I thought it
made me duller and less energetic and it didn’t seem to help with my
depression. My anti-depressants made me more depressed. I stopped after a few
months.
Gradually I felt better, though I have still never regained
the vitality of my old life. (Maybe being 60 has something to do with it too?)
But by the time a year had rolled around, when I had fully recovered and stopped
taking all of the narcotics, I also found that I was becoming more aggressive
again. I became more competitive and argumentative; I found that I was getting
more worked up at my daughter’s soccer games, and bickering more with my
family. I could actually observe my personality changing.
One of the models that I have constructed over my life by
which I try to make sense of human behavior is that I see men as always being
in a state of balance between our competitive side and our belonging side. On the
competitive side we are aggressive, driven creatures who are always trying to
gain the upper hand on our peers and rivals; on the belonging side, we are
loving, caring beings who are devoted to our families and friends and would
even stake our lives to protect them. It
seems apparent that both sides have been necessary to support survival and
growth of the human species; we are aggressive so that we can meet our desires
to attract the most suitable mate and to grow and protect our families; and we
are also social and cooperative so we can harness the power of tribes and
communities and live together in harmony. I have come to see it as a yin-yang
between wanting to love our brothers but still establish dominance over them.
It is why we can go out on the rugby field and bash our heads together until
the blood runs streaming down our necks, then go to a bar afterwards and stand
on the tables, and sing together until the cops arrive (a most memorable day I
experienced that helped me put the finishing touches on this model.) I’m sure
it’s also why, among other things, women find us incomprehensible.
As for women, I believe they also have some of this yin-yang
between competitiveness and caring, but perhaps less so than men. I don’t feel
as confident in my model when it comes to women; I don’t really understand how
women think and I never have and never will.
None of these ideas are new or surprising or original; I’m
sure I’ve cobbled the together from a variety of sources. But it is a model
that is very useful for me when I try to understand why we men do the things we
do.
One of the glib comments I make when I am describing this
model to friends is that just about every bad thing that has ever happened to
me has come from my competitive side, and just about every good thing has come
from my cooperative side. True? I don’t know, but I have been thinking about it
a lot. What if all the rotten stuff men do, cheating and fighting and raping
and plundering and warring, all come from that competitive side and our need to
be the alpha male? What if we could do away with it?
We seem to worship it in our culture. I remember thinking as
a teenager, near the end of the hippie period, that we had moved on to an era
when men had learned that being more “manly” was not the answer, that we were
learning to make love, not war. That we had entered an era of enlightenment, where
men would communicate more honestly and freely, and treat women as equals, and
nurture living things instead of destroying them. Sadly, it seems to me that we
instead moved in the opposite direction. Manhood today seems to be about body-building
and six-pack abs and in-your-face tattoos, and buzz cuts. Not to mention that
acquiring wealth and displaying it proudly has never been more in style. It’s
pretty clear to me that the culture turned away from ideals of The Great
Awakening of the 60’s, that today is all about becoming stronger, meaner, and
more ruthless; and loving your brother is for wimps.
I’m sure there are many men who would hear my views with
disgust: just more evidence of the pussification of America. I’m sure they
would say it was the will of men that tamed the planet and shaped it to our needs.
Where would society be without testosterone and the drive to be the alpha? Who
would build things and innovate and create a culture of production and
consumption? By God, we are men, this is our birthright! We build this world,
with its great technology and its indulgences and the opportunities to satisfy
our animal desires. Without men and our lust for greatness, what kind of world
would it be?
What kind, indeed, I wonder. I am very concerned about the
future of human beings on planet Earth. I believe the challenges that loom
ahead of us are daunting: climate change, overpopulation and resource
shortages, the threat of nuclear confrontation, the possibility of untreatable
diseases and pandemics. All of these are, at their roots, driven by the animal
instincts of men, for more power, more wealth, more indulgences, and more trophies
of status. Our culture sneers at the notion of living in harmony with our
environment; we believe we are too smart to be held back by the mere constraints
of nature and that we can always innovate our way out of any problems we create
along the way. And so we grow and consume at an ever more voracious rate, with
world population nearing 8 billion, soon to be 10, soon to be 12 or 15 billion
people, without a thought that this planet simply cannot support that many
human beings. I am so concerned about the future for our children, and indeed,
our entire species.
I didn’t really intend to go off on a rant about the end of
civilization. This piece is supposed to be about how we are all really just big
sacks of chemicals, and though we think we are creatures of free will and
thought, changing that mix can change who we are. As I write this I am in now
in the later stage of my two week chemo cycle; my stomach is churning like a
garbage disposal full of gravel, I have a persistent throbbing headache, and
when I close my eyes I feel like I’m on a gently rolling lake. Chemo-state reminds
me most of one of those really special hangovers that come from mixing all three
of the major alcohol groups, which I guess is fitting since chemotherapy is just
another type of chemical poisoning, in my case with four different powerful
drugs. I’m a very different person during chemotherapy: passive, jittery,
depressed, and very anxious. If someone so much as raises his or her voice
around me it throws me into a tailspin.
Perhaps the most difficult part of it all is the depression.
The chemicals seem to have been formulated to produce a constant, penetrating
state of depression. My chemo mind is hyperactive, and the thoughts that keep churning
are sadness, worthlessness, frustration, regret, fear - a whole cornucopia of
desperation. I know these thoughts are not “real”, that they are drug-induced
and not responses to outside stimuli, so I feel like I should be able to will
my way through them, to accept that this is just what the drugs do. But they
are persistent, vicious little buggers.
When I was young and foolish I experimented with
recreational drugs, including one I choose not to name. My first experience
with it was an awesome, enlightening ride; I reached a state where I suddenly
knew that human beings were truly beautiful and that I felt love for us all. I
could see that most, if not all of us, had shielded our inner beauty under shells
of cynicism and mistrust; but I could also see that we all have the capacity to
shed those shells and express our inner perfection. I felt that we had a common
connection, that we had evolved from a core organism that had shared it’s
essence with us all. Of course I did eventually come down and I resumed seeing the
people around me as I had always seen them before, but the most wonderful and
profound thing was that I remembered
what it felt like to see them as holy and beautiful. And I have never forgotten
to this day that we are all essentially beautiful creatures who have the
capacity for pure love and perfection, despite the shells that we build up
around us.
Since then I have read many articles about this type of drug,
and the accounts from people who have tried them seem to be overwhelmingly
positive. So many of them report reaching a similar state of bliss, of it being
one of the greatest experiences of their lives. Their accounts seem very
similar to mine, that they felt an outpouring of love and a sense of oneness
with people and the earth. More recently, I’ve read of research that shows these
drugs have been very effective at treating profound depression and
post-traumatic stress syndrome. These chemicals seem to have extraordinary
potential for good.
I don’t know what else to say about that. We live in a
culture where taking the drug I described is a federal crime, even smoking a
joint is still illegal in most places. But drinking alcohol is heavily
promoted, and opiates are so easily available that millions of Americans have crippling
addictions. So we Americans don’t have an aversion to taking drugs, we just choose
the ones that cause ruinous addiction and generate enormous profits over the
ones that produce serenity and bliss. Sometimes I wonder what would happen if
we just put the stuff in the water, wouldn’t that be an interesting experiment?
Of course the most important way in which we acquire the
chemicals in our bodies is by the foods we eat. I’m sure that most everyone
understands now our food is less nutritious and full of lots more questionable
stuff than the more natural plants and animals that our ancestors ate. In light
of that, I was impressed and uplifted by this article about how The Netherlands
is at the forefront of efforts to improve farm productivity and improve the
quality of their output: http://www.nationalgeographic.com/magazine/2017/09/holland-agriculture-sustainable-farming/.
It’s nice that we are reaching widespread awareness about the importance of
eating better, but efforts like these are still very few and far-between.
And, shortly after I read that one, I came upon this
depressing piece about a new scourge that is impacting the nutritional value of
our crops: http://www.politico.com/agenda/story/2017/09/13/food-nutrients-carbon-dioxide-000511.
Just one more effect of climate change that millions of Trump-supporting
Americans can dismiss as a libtard plot to enrich those money-grubbing
scientists (and Al Gore).
Finally, there was this disturbing article about the decline
of insect populations in Germany: https://www.washingtonpost.com/world/europe/buzz-off-german-study-finds-dramatic-insect-decline/2017/10/19/6a087d40-b4c8-11e7-9b93-b97043e57a22_story.html?utm_term=.8c337edf1410.
It doesn’t really fit with my theme of chemicals, but it is peripheral to a
couple other things I touched on. And it does seem to be pretty important.
So that is my rambling piece on chemistry. I do wonder if we
could change the world if we could somehow reformulate ourselves to be more
caring, loving creatures. But I suspect that most people would think I’ve lost
my mind. It’s quite likely that I have.
Friday, October 27, 2017
I’ll probably write something soon about what I consider to
be my new reality, but for now I’ll just do a quick summary of the facts.
A couple of months ago they found a small tumor on my liver.
My doctor recommended chemotherapy, and I completed my fourth round this week.
Chemo hasn’t gotten any easier, I’ve been pretty miserable each round during
the chemo weeks, though I’ve felt reasonably good during the recovery weeks,
even playing golf several times. But overall, going through chemo again has
been very challenging (putting it mildly).
Today I had a CT scan to see how I’ve progressed. The good
news is the tumor has shrunk and there are no new ones, so my doctor felt it
was as good as I could have hoped.
On the other hand, he described to me today that I need to
stop thinking in terms of being cured of cancer. Pancreatic cancer, he explained,
almost never goes away entirely. It almost always reoccurs, and is usually
present even when undetectable. I have to start thinking about managing cancer
instead of being cured, and it is likely that I will be receiving treatment intermittently
for the rest of my life. So he is recommending that I continue with chemo for
now, probably 8-12 more rounds. If I am fortunate, I may again have long
periods where I don’t have to be in treatment, such as the 19 months I had
between my surgery in 2016 and this reappearance.
He suggested that we cut back on the dosages of the four
chemicals that I receive by 20%, which should make it significantly easier. He
also said I can lengthen the time between treatments to 3 or even 4 weeks,
which also is very good news; having 2 or 3 good weeks for every bad week will make
a big difference for me.
So, it was quite an impactful day. It is, as I described, a
new reality. But I still look forward to being around for a long time, and
making the most of every day.
As always I love hearing from you, at rabraham1@cox.net or by text or Messenger.
Tuesday, September 26, 2017
It Is Time to Stop Kneeling for the National Anthem
Let’s begin with remembering how this all got started. A San
Francisco 49er quarterback of mixed racial heritage, Colin Kaepernick, felt
that he could not in all good conscience pay homage to a country in which
people of color were not being treated equally by the police and criminal justice
system. In particular, he and many others were outraged by several incidents in
which seemingly innocent young men were killed by over-anxious policemen. From
all indications, his gesture of kneeling during the anthem was sincere, not calculated,
and certainly not designed to bring him any sort of gain; in fact it has only
brought him pain and financial loss.
Since then, the gesture of kneeling during the anthem has
blown up and become yet another divisive issue in an America that becomes more
divided by the day. Kneeling has taken on a much wider and less defined meaning,
to where the noise has drowned out the original point.
Most importantly, the chance to come together to address an
important issue, equal treatment of all Americans under the law, has actually
been decreased because of the animosity generated by the protests. They have
become counter-productive and self-defeating.
So, I propose the following solution.
First, stop kneeling during the anthem. It is alienating millions
of NFL fans and customers, many of whom would step up to support the cause of
equitable treatment under the law.
Second, find a way to continue to call attention to the
issue. My suggestion: all players take a knee during the first two plays of
each game. On the first play, Team A kicks off to Team B, and Team B runs it
back for a touchdown. On the second play, the roles are reversed, and Team A scores
a touchdown. On the third play, the game basically “starts” with the score 7-7.
It may be far-fetched, but the idea is sound: do something dramatic that is not
offensive to your constituency, but keeps the issue in the public eye.
Third, address the real issue. The NFL should start a fund
to raise awareness of police, train them on how to more effectively manage
their actions around people of color, and buy them more protective gear. The
NFL is a multi-billion dollar business, and it would not be unreasonable to
expect them to start a fund in the tens of millions of dollars. The League
would also start a challenge campaign to ask fans to match their contributions.
In other words, bring all NFL fans into the tent and do something positive to bring
change.
This issue has become emblematic of so much of what is going
on in America today. It seems that we would rather take sides and revel in our
anger than seek common ground and work toward a solution. This one is not very
difficult: why would anyone not support equal treatment of all Americans under
the law? Maybe a plan like this could set a precedent for more opportunities where
we could work as one nation.
Friday, August 18, 2017
Untitled Chapter
I’ve always taken pride that I am a logical person. You are
a logical person, too, right? We take stock of the facts, assess them
carefully, and make sound judgments and conclusions. That’s what educated,
enlightened people do. But I didn’t do it when I had pancreatic cancer. The
facts said that only one person in sixteen lives more than three years. I never
bought into that; not long after I made it through my first chemotherapy
session I began to believe that I could survive it, that I could be the one of the
sixteen. Not because I was logical or rational, but because that’s what human
beings do – we are natural optimists, we believe we are going to win, often in
the face of daunting odds. And with a little luck, or maybe a lot of luck, and plenty
of support and some degree of determination, I turned out to be right. So here
I am 27 months after my diagnosis, still alive and sometimes kicking.
Not too long after surgery I became aware that the reoccurrence
rate of cancer for pancreatic sufferers is pretty high. But I never bought into
that either; I felt from the moment they told me ‘we got it all’ that I was
done with it. It seemed to me to be karma, the rightful end to my story, that I
faced down cancer and won. It was time for me to start chapter two and do something
important with the rest of my life. And so when I went for quarterly check-ups and
each time received the news that I was still cancer free, it just validated my
sense that this is how it was meant to be and would always be.
But it appears that odds and probabilities are stubborn, and
they don’t like to being sneered at. Last Friday my CT scan showed a shadow on
my liver, about 8 millimeters small; ‘atypical, probably a cyst’, my doctor
said, ‘but we will review it with the tumor board on Tuesday’. Which they did.
And they concluded it isn’t probably a cyst; given my history and its
appearance, it is likely cancerous. And, being that caution is the better part
of valor, or something like that, the situation calls for immediate treatment.
In other words, it’s back. I’m “Cancer Guy” again. The
foundation has shifted under my feet.
My take, which probably has some relationship with reality,
is that the outlook is much brighter this time. The tumor is small, we caught
it early; it is in a much better place, on my liver instead of my pancreas; the
liver is the only organ that can re-generate, and it is more accessible to
surgery; and we know that chemotherapy was very effective for me. I’m not in a
state of panic like last time; I feel confident that we can handle this. It’s a
setback, not a defeat.
But, it reaaaallly sucks!! I have to start chemo in about
three weeks, and chemo, at least my chemo regimen, Folfirinox, is hard! Fatigue,
migraines, dysentery, neuropathy… you don’t want to hear it, and I don’t want
to tell it. I already know this story.
So how worried should I be? I don’t know, and I don’t want
to find out. Maybe chemo won’t work this time (I think it will). Maybe
radiation and surgery won’t be successful (I find that highly unlikely). More
troubling is the idea that this may keep happening, that I will continue to
have reoccurrences. Or that the next time the cancer will be widespread and
beyond reasonable treatment. I’m not buying that either. Of course I can’t
completely ignore those possibilities, but I’m not worried, even if I should
be. But I am really bummed out that I have to go through with this, and put my
family through it again.
I was cancer free for 559 days, or thereabouts. It has not been
an easy time, for many reasons. The hardest part has been not yet finding a new
sense of purpose. But in other ways it has been the best period of my life; I
have loved to eat more, and loved to play golf more, and loved to watch sports
more, and loved to read more, and most of all, loved my family more, than I
ever had before. Every day I have noticed extraordinary things in ordinary life
that drifted past me before. There are lots of them.
Doing chemo again is going to be tough. But there is one
part that is pretty cool: I get the strangest visions when I’m in a chemo
session, as though experiencing the weirdest of all dreams but in a fully
wakeful state. I can only remember one of them clearly from the last time… I’m
watching a chorus of dozens of little owls, moving in unison to an owl director
and singing a song I cannot hear; their identical little white owl faces moving
this way and that, swaying with unheard music, and staring with their big brown
owl eyes. And the owl director waves his batons with his wings, leading them to
ever higher states of owl ecstasy. It was glorious.
I’m going to write them down this time.
Sunday, June 11, 2017
Rick 2.0*
So it’s been about 17 months since I had surgery and became
cancer-free. I’m still trying to understand what I went through, how I have
changed, and who I am now. That all sounds awfully new-agey and self-indulgent,
doesn’t it? I think it means that since I’m not working I have lots of time to
think about cancer.
Most of the time I feel pretty lethargic, as though I just
got out of bed. Except when I have just gotten out of bed, then I feel
profoundly lethargic, like I just came out of hibernation. There are a couple
of ways I address this: running or biking, which make me more alert but also
tired; and caffeine, which makes me feel less lethargic but very edgy. In other
words, when I consume caffeine I still struggle to focus on anything, but I
struggle at a much higher rate of speed.
The downside of exercise and caffeine is that I feel worse
later; I don’t seem to recover very well by sleeping. So, the next day I feel
more lethargic, and I exercise more and drink more caffeine, and so on. Detect
a problem here? About every 4th day I just lie on the couch and play
word games obsessively, and start the cycle over again the next day.
While I had cancer, I got older (so did you). But I’m in my
7th decade now, so I’m sure I would be feeling the effects of age regardless
of my health issues; everyone my age seems to have health issues. So, I don’t
really know which problems I have as a result of cancer, and which are just from
getting older.
Clearly my body chemistry is different now that I’m missing
an organ or two, and it impacts how I feel. And I would probably feel better if
I knew how to adjust it with meds and supplements. But I don’t think the
doctors know what I should be doing, and nothing I have tried has been that
effective. I have a friend who has a practice helping people recover from and
avoid cancer through nutrition and supplements, and I will eventually get
around to seeing if she can help me.
Here are some of the other ways I feel physically different than
I used to:
- My stomach makes incredible digestive noises. It sounds like a garbage disposal full of chicken bones. It’s a little uncomfortable, but mostly just weird.
- I can’t drink much alcohol. One is great, two is dicey, three is big trouble: hangover symptoms at midnight, racing pulse and hyperactive thoughts. This is unfortunate, beer and wine taste better than ever.
- I sleep lightly and have wild dreams. I wish I could remember them, they are awesome. But as I said before, I don’t wake up feeling very refreshed, just groggy.
- I still have some numbness in my fingers, and a fair amount in my feet. They don’t hurt, but they get cold easily. Most of the time I don’t notice it.
- My nose runs. Sometimes when I am just sitting around doing nothing.
- I’m lightheaded, and I am clumsy (clumsier I guess would be more accurate). I’ve had a couple of ugly falls, usually by tripping over something; I don’t just randomly fall (yet). But in the past I would have just stepped over these things. (The worst one was when I was standing on a chair reaching something on the top shelf of the china cabinet. The chair shifted a little, and I fell into the glass panel of the door, shattering it into hundreds of tiny shards. Later that day I saw a couple of posts from the neighbors wondering about an explosion in the area.)
- I’m more emotional. I get upset easily. I don’t like watching dramas on TV or the movies, I can’t sleep afterwards and I retain the images for days. I lose my temper quicker. I cry at puppy videos and pictures of kids.
- I seem to have the last song I have heard playing all the time in my head. If I hear an interesting phrase, it seems to play over and over in a loop until the next song or phrase.
Despite this stuff, I still feel good enough to be happy
most of the time. I’m at my best when I’m exercising; I love golf more than
ever. When I’m playing golf I never think about cancer. Cycling is great, too,
though I’m even more not-fast than I used to be. And I’ve rediscovered running,
if you can call a 12-minute pace running. But for many years my stomach hurt
when I ran, and now it doesn’t since there’s not a big honking tumor in there.
I can run 3-4 miles, as long as I have a whole afternoon to do it and two days
to recover. It’s cool to enjoy running again.
Another great joy is food. I’m not content any more to just
eat to not be hungry. I look forward to every meal, I go to the store and buy
good stuff, and I appreciate every bite. I used to think foodies were silly
snobs, but now I know they are most enlightened creatures. The year that food
tasted like licking a flagpole was very discouraging, and I will never take the
joys of eating for granted again. It’s a wonder I haven’t gained 50 lbs. since
last January.
The physical changes are significant, but the mental and
emotional effects of going through cancer are more impactful and puzzling. I
view everything now through a lens of having had cancer, as though this act of
my life is being filmed through a filter. I have very clear memories of the events
and the images of cancer, but the way I felt through it all has been converted to
words; remembering being scared or overwhelmed or depressed is nothing like being scared and overwhelmed and
depressed. The Year of Having Cancer has become like it happened to someone
else, or I watched it on TV, or maybe I didn’t have “real” cancer, just kind of
a JV version. It seems like I should try to hold onto those feelings, that they
are too important to let go, but they are gone. I get teary when I read my blog
account of events, and can’t believe it was me.
Another strange dynamic is not being the center of attention
any more. I’d be lying if I said I didn’t enjoy the attention I got while I was
sick, the texts, emails, visits, cards, and words of sympathy. It seems really
perverse to say that I miss it considering the price that it required, and it
makes me creepy vain to have those thoughts. I feel like my friends are thinking,
“OK, you’re not going to die soon, so we don’t really have to be in touch all
the time”; I know this is unfair, I would be the same way. And often I feel compelled
to tell new people I meet about my cancer, which I don’t really understand and
don’t like; does it comes from wanting to inspire people, or just get more
attention? I’m sure some of my golfing partners aren’t convinced that I just shanked
my 7-iron into the lake because I’m a cancer victim.
The biggest challenge I am facing is what to do with the rest
of my life. I don’t want a regular full-time job; I have neither the energy nor
the patience to deal with that. But I don’t have a clear sense of what I want
to do on a part-time or volunteer basis. And most significantly, I have not
been able to get unstuck and start looking into it. I’m intimidated by the
range of possibilities and the ways the world has changed; I’m feeling insecure
about my age and my abilities; and I don’t know if I can handle being rejected.
So, it’s a lot easier to say, well, I don’t feel that great today (which I
don’t), so I’ll think about it tomorrow. It’s especially easy to do that now that
it’s golf season.
I’ve been considering just retiring and doing recreational
stuff full time. But the reality is that doing nothing makes me feel bad about
myself. There’s a powerful voice in my head that says I am in the prime of my
life, and that I ought to be doing something worthwhile. I find that I’m in
agreement with that voice (as I probably should be since it’s mine).
I think it’s also important that I get out of the house and
be around people and stop dwelling on being a cancer victim and not feeling perfect.
I enjoy being around people, most people, as long as they are not knuckleheads.
I miss the kids I used to teach (though I don’t miss teaching them. Except the
few that seemed to enjoy learning; this is why I don’t really want to go back
to teaching, most of them have very little interest in learning any math – and
why would they?) But I’m sure it would be good for me to be around more people
than just the septuagenarian Koreans at the golf courses and the check-out
clerks at Harris-Teeter.
All of the above, I wrote two weeks ago. Since then a couple
of things have happened: first, I stopped taking two of my meds. I stopped
anti-depressants because they were making me depressed, and I stopped blood
pressure meds because I wanted to. As a result, I feel more alert and happier,
though I’m sometimes a little lightheaded (OK, dizzy). And I sleep better. So,
it’s a trade-off, but I think I like this state better.
Second, my dad passed away after a long illness. I really
haven’t felt very sad yet, it was expected for a long time, and it’s a relief to
me that he is no longer suffering. Also, I think I have a different attitude
toward death since my illness; I’m sure I’m still as terrified about dying as
anyone else, but now I just don’t think about it. And I feel defiant, like “Screw
you, death! I like being here too much to waste my time with you.” But I am
beginning to be visited by memories of my dad at random unexpected moments, and
I find myself smiling or gasping or tearing up. I guess that’s going to happen
for the rest of my life, I will miss him a great deal.
So I feel ready to find a new calling for the new Rick. I’ve
come to think that it is important for people, that is, me, to be doing
something that they feel is worthwhile, and I have run out of excuses. Well, I
guess I will always have an excuse, but I’m tired of listening to me use it.
I wasn’t sure how to finish this piece, but now I am.
Yesterday I ran in a “Purple Stride” 5K race to raise money to fight pancreatic
cancer. There were about 3000 people estimated to be at the event. At one point
they asked the survivors of PC to come up on stage, and 12 of us walked up.
That’s right, 12. That speaks louder than anything I could ever put into words.
God bless us all!
*Thanks, Frank Hightower, for the title!
Friday, May 26, 2017
Bob Abraham, My Dad
My father,
Robert Abraham, was born on May 12, 1928 in New York, NY. His family moved soon
thereafter to Woodmere, NY. Woodmere is one of the Five Towns on Long Island, a
group of villages on the south shore that, I as I understand it, was the quintessential
nouveau riche Jewish community. Bob was the first of two children that Henry
(NMN) Abraham would father with the former Karoline Simon. His sister Virginia
(Ginger) would arrive two years later, and a half-brother, David, ten years
after that.
Henry was
born in New Orleans in 1899, the son of Morris and the grandson of Henry. The
elder Henry was a German immigrant who became an eminent leader in the business
community, one of the most important financiers and entrepreneurs in New
Orleans as it became the center of the world cotton trade. Henry had has hands
in many enterprises, including a cotton processing plant and a cotton trading
company, as well as a partnership with the Lehman family in New York that later
became the Lehman Brothers investment bank. He is prominently mentioned in
histories of New Orleans, noted as being one of America’s millionaires in an
1870’s compilation.
Henry died
just after the turn of the century, and Morris took over many of his business
interests. Over the next ten years he proceeded to lose most if not all of what
his father had accumulated. I’ve heard two explanations: Henry’s (Bob’s
father), in which he explained that Morris speculated very heavily on cotton
prices just before The Great War, and lost his fortune when the government
instituted price controls; and my dad’s, which described him as a heavy drinker
and gambler. From the little research I have done, the second explanation
appears more likely; my brother is still digging into the story. At any rate, Henry
had to miss out on college and go to work to support himself and his family.
There are
many gaps in my knowledge, but I know that he landed in New York and became an
insurance agent. For almost all of his career he ran the Woodmere Insurance
where he sold and serviced Chubb Insurance Policies to the increasingly
affluent, mostly Jewish families in the area.
In 1926 he
married Karoline Simon. He once described her to me as “not a beautiful woman,
but very handsome”. From her pictures she appears to be rather short and
stocky, with a bit of a snub nose and a bob-cut. I think Henry was a bit
uncharitable; she was pleasant to look at, and projected an amiable, no-nonsense
demeanor. She is best known to my generation as an excellent golfer; she was once
Woodmere Country Club Champion.
In 1932,
Karoline had a blood vessel burst in her face, and she unceremoniously died. Bob
was four, Ginger two. Now that I have raised three children, I am dumbfounded when
I consider the impact that it must have had on my father and my aunt to lose
their mother at such a desperately dependent age. I know that human beings are
more resilient than we often believe and many who lose a mother go on to have
happy, well-adjusted lives, but it is difficult for me to fathom it. Her sudden
death and void she left behind would go on to impact the lives of her
descendants for generations.
Two years
later Henry married Doris Isaacs, who became Dad’s stepmother. Doris took over
caring for the children, but apparently did not readily bond to her two step-children.
It also did not help that his father was not a nurturing sort; he was the
typical patriarchal type of his generation. My dad never talked about his
relationship with his father, but I knew Henry well enough in later years to
know that he would not have been a man to offer much emotional support to a
child, let alone one who had lost his mother in infancy. He was loud, outspoken,
belligerent, and he liked to drink. He was not particularly lovable.
So the absence of their birth mother continued to have an impact on the
children.
Bob grew up
as a shy, insecure little guy. Certainly his emotional development was
stunted by the absence of his mother. It became a family joke over the years
that in many ways Bob always remained four years old; he was awkward, stunningly
impulsive, and juvenile in his enthusiasms and frustrations; throughout his
life he asked child-like questions and then often asked them again a few
minutes later. I can only imagine what his childhood must have been like
without his birth mother.
He would
only describe it as not very happy. He really would not talk about it, but when
you asked a second time he would say that all of the other kids were smart and
sharp and aggressive, and he wasn’t. In a culture where it was expected that a
young man would be a doctor or lawyer or banker, and to not be was
akin to being a panhandler, he was not in the game. He had a few childhood
friends, but he never spoke much about hobbies or other activities. I can’t
recall a single happy memory he ever cited about his childhood.
There was
one part of growing up that he did enjoy: summer camps in the Adirondacks,
which he attended every year. While he never talked about that much, either, he
would say that he liked camp and he became interested in wildlife. He learned
the names of birds and trees and developed the interest that would become his
passion later in life. He also claimed to be the best swimmer in the camp, and
he remained an effortless swimmer throughout his life. His growing love of
nature led to his choice of a career: he wanted to work for The Forest Service.
So he
decided to go to college and study Forestry. He would prove to have quite a
tumultuous college career. He started at Paul Smith’s College, a
nature-oriented liberal arts school in the Adirondacks near Harrietstown and
Upper St. Regis. His father missed him terribly, so he only stayed a semester
and then went back home. The next year he tried Syracuse University, but he
struggled academically and again only lasted a semester. His next stop was
Boise St. College in Idaho. That didn’t go so well either, he once told me he
was bullied when he was there, as a short insecure Jewish kid from Long Island
in Idaho.
About this
time, his sister who was attending Richmond Professional Institute set him up
on a blind date with her friend’s sister, a nice Jewish girl from Richmond,
Doris Tatarsky. One thing led to another, and in 1950 they got married at age
22.
He and Doris
eventually landed in Southwest Virginia, where he continued his studies at VPI,
a small agricultural and engineering school on the edge of Appalachia, and she
attended Radford College. He went on to earn his Forestry degree there when
they agreed to waive his requirement to pass Organic Chemistry; the department
said he might not be able to pass Organic, but knew more about birds than the
professors.
While he attended VPI he worked part-time at the local newspaper.
He lasted in
The Forest Service for about three years. He served stints in Mt. Shasta,
California and then Grants Pass, Oregon. During this period they had a son,
David, in 1953. But Bob was prone to getting lost in the woods, and with an
infant at home, he struggled with the 10 days on/4 days off schedule. And he
and Doris missed the support they might be receiving from their families. So, he
left the Forest Service and they decided to move back to Richmond. A few months
later while visiting a friend back in the Blacksburg area he discovered that
his previous employer at the newspaper was interested in hiring him. So they
moved back to Southwest Virginia, settling in Christiansburg.
A few months
later he had an opportunity to buy the job-printing business that accompanied
the newspaper operation. He took the offer, and started Christiansburg Printing
Company, where he did small jobs for local business, like printing brochures,
handbooks, manuals, menus, and so on. He would go on to do this for nearly
forty years.
Bob and
Doris, like many married couples, were in many ways opposites. Doris was
mature, independent, self-confident, and capable. Bob was child-like, needy,
and impulsive. Doris was serious and practical. Bob was impulsive and
emotional. Doris was social and effusive. Bob was halting and awkward, though
he did enjoy being around people. Both were bright; Doris was a teacher, and
she could sew, and knit, and make things, and take on any sort of challenge.
Bob was probably ADD and could not focus on things, but he had a remarkable
vocabulary and a formidable memory. His impulsiveness and clumsiness drove her
crazy; his shyness was not a problem, she filled the gaps in conversations.
Over the
years more kids came along. Michael, in 1954; Ricky (me) in 1956; and finally a
girl, Karen, in 1961. The kids brought issues, as kids always do, each raising
the stress level in the household by another order of magnitude. All of the
children were lively and demanding, and it was a boisterous household. It was
probably a fairly typical family, each of us happy and unhappy in our own ways,
they were the only ways that we knew.
Running a
printing business was not necessarily a role for which he was well suited; the
printing business required skill with machinery, analytical ability with job
design and costing, and the people skills to manage customers and employees.
Bob was reasonably competent with the analytical piece, and capable with
managing customers and workers. But it’s hard to imagine how he ever managed to
deal with the machinery. He swore a lot, and stomped his feet, and threw lots
of ruined paper, and became good friends with the journeyman press repair
people. He had the wrong temperament to be a skilled machine operator, but
somehow he was able to produce the jobs, and build a successful business. He
never made a whole lot of money, but our family never had a need that went
unmet. And Bob cared a great deal about his employees, many of whom were with him for twenty
years or more. He derived great fulfillment from running a successful business,
and was very proud to be honored several times by the local Chamber of
Commerce.
Bob was an
enthusiastic and devoted father. Though he had never played sports, he loved
that we were passionately involved. He played with us in the neighborhood, and
later coached our baseball and basketball teams – though he knew nothing about
the sports. He attended every game we played, and especially loved watching me
play football and basketball in high school. I took for granted that he never
missed a game; I once told a friend that he knew nothing about coaching
baseball, and he replied, “But he is always here”. Left unsaid was that most of
the other dads were not.
He and Mom
were also committed that we would have the whole gamut of world-expanding
experiences. We went to two World’s Fairs. We went to Cooperstown and The
Everglades and Grandfather Mountain and Nags Head and Niagara Falls and New
York City and camping trips and beaches and museums. My brothers were active in
the Boy Scouts, and we owned a cabin on Claytor Lake for a while. All of these
trips were punctuated with both crises and triumphs, and they yielded indelible
memories.
Bob was not
very adept at sharing fatherly life-lessons or wisdom he had gained; he surely
had no role model from his own childhood. But he set examples by the way he
lived. He was insistent that character was independent of race, or color, or
class; he said that he had known good people and bad people in all walks of
life. He stood out as a supporter of the local Negro community (the words of
the times); I remember, among other things, he nominated a colored man for the
Kiwanis Club (he was not accepted). I don’t recall other details, but the
colored families knew that Bob was their friend. Recently one of my classmates
who is now a college president told me that Bob was one of the first community members
to promote real equality for the Negroes in our schools and businesses and
clubs. They all knew who he was and that he would stand up for them.
In fact, being
a small town, just about everyone knew each other. Most of the more prominent
families belonged to the local country club, and many were on the city council
and the local boards and the service clubs. Bob was not, though he did enjoy
being in Kiwanis. He and Doris had good friends, George and Mildred Gerberich
in particular, and they had some social outlets. They sometimes went to bridge
parties and Cotillion Club dances, where twice a year they would leave the
house with a fifth of liquor in a brown bag and come home with it still above
the label. For the most part, the demands of parenting did not allow for many
other interests.
Being Jewish
was not a major factor in our lives, to me more of a minor annoyance like a
pebble in my shoe. We did go to Sunday school in Roanoke, which I hated, and we
did all have Bar Mitzvahs, which provided for raucous reunions with Aunt Ginger
and the cousins. I did not experience any real prejudice, though it always
remained something that marked us different from the normal kids. Bob was
largely indifferent to his Jewishness; the Jewish men in Roanoke seemed to see
him as an odd bird, perhaps due to his complete lack of the trademark Jewish
condition (ambition). I often thought of our family, the Jews of Christiansburg
as being, as Wilt Chamberlain once described himself, a population segment of
one.
In my
teenage years Bob experienced significant health problems. He had a series of
problems with kidney stones, and was often in great pain as he tried to pass
them. Sometimes he had to go to the hospital so they could explode them. He was
diagnosed with parathyroid problems, and had two surgeries to remove his
parathyroid. He also had an operation on his side, I don’t recall why. I later
came to believe that all of these problems may have stemmed from his years of
cavalier handling of the powerful solvents he used to clean his printing
presses. But who knows? I was not very good at supporting him during this
period; I hated the hospital, and refused to visit him. I still carry some
guilt about that time.
Of course
there were so many, many other experiences that we all shared. My memories revisit
me at random and unexpected times: him teaching me to drive (“pretend there’s
an egg between your foot and the pedal”); or trying to impart his love of
fishing; and hours of playing ball in the front yard. Getting lost at The World’s
Fair. Going to the hospital with a broken arm. Raising two litters of puppies.
So many memories! Being a father was Bob’s greatest joy. We took him for
granted; the importance of having a real father to a child can only be measured
by knowing a child who did not have one.
Inevitably
we grew up and moved on. And Bob moved into his greatest era: retirement.
Another family joke is that Bob may not have been that good at working, but he
was world-class at retirement; he passed on the printing business to Michael
and took up his new life with great enthusiasm. He began fishing regularly, and
spent hours on the New River and at Claytor Lake. He took up scuba diving, and
with his new friends Tom and Diane took many trips to the Caribbean, Belize,
and even the Great Barrier Reef. He became an avid photographer, especially of
wildlife; he took thousands of shots of sea creatures, birds, and the minks and
muskrats he saw on the river. He was thrilled with his new digital toys, his
cameras, computers, and printers. He may not have been a skilled photographer,
but he succeeded by brute force, producing an extensive library of exquisite
photos by taking tens of thousands of shots. He loved to send them to the local
newspaper, which, to his delight, often printed them. His outdoor life brought
him great joy; surely these were his happiest years.
He and Doris
no longer had the stresses of raising children, and they settled comfortably
into their new life. They took trips to many places, including Israel, Iceland,
and Australia, to name just a few. They played more bridge, and joined more clubs
and political groups. They loved traveling to visit their seven grandchildren.
They seemed more relaxed and contented, and seemingly closer in spirit and
temperament.
In his late
sixties, Bob was diagnosed with prostate cancer. He was treated with radiation,
and this became an afterthought. However, it would come back to haunt him two
decades later.
As he aged
through his sixties and seventies and eighties, he gradually became less
capable and curtailed some of his hobbies. He fished less, and would not go out
on the river alone. He stopped scuba diving as the trips became too much for
him. He turned increasingly to walking and taking pictures, sometimes in the
woods and eventually the paved path along the New River. But this was a gradual
process over twenty wonderful years, and his love of nature and photography
only grew stronger. It was a great day if he got a good shot of an interesting
bird; it was a wasted one if he didn’t. He was just as impulsive and child-like
and filled with wonder as ever; his friends loved him for his enthusiasm. Every
great picture Bob took was, for him, the first one.
Two years
ago at age 87, Bob began a precipitous decline. His bladder began to fail due
to damage from the radiation treatment twenty years prior. He began to have
regular urinary tract infections, which gave him high fevers and landed him in
the hospital. The strong antibiotics they gave him quelled the infections, but
they gave him severe stomach pains and suppressed his appetite. He was in and
out of the hospital every couple of months; when he was in the hospital he grew
increasingly despondent and depressed. Eventually his kidneys began to fail,
and he had tubes put into them to bypass his bladder altogether, requiring him
to have urine collection bags. But still the infections continued, and so did the
stays in the hospital. Being bed-ridden caused his spine and nerves to
deteriorate, and he began to have significant pain in his back and buttocks.
His prostate cancer also returned, which may have been the primary cause of his
spinal pain. It was a dreadful period for him; he endured hour after hour after
hour in the hospital feeling miserable, and knowing he would have to go back
again a few weeks later. Eventually the pain and misery began to dominate his
life, and he lost his will to live; he decided he would not to go back to the
hospital again. The pain continued to worsen, and hospice care greatly
increased his medication, until he was often incoherent.
As I write
this he is on his deathbed. He has been non-responsive for three days. He is on
massive amounts of morphine, but he appears to be resting comfortably. We talk
to him and hold him, and hope that he hears us. We will all be relieved when
his suffering comes to an end, it won’t be very long.
How does one
measure the value of a life? If it’s by career success, or wealth gained, or
accolades earned, Bob’s was unremarkable. But if it’s by living with honesty,
and integrity, and respect for people of all origins, Bob will be
judged much more kindly. If it’s by being a loving father, a devoted husband, a
man who was always there for his family and his community, he will be near the
top of the list. And finally, if it’s by being a truly authentic person, a man
who lived without an ounce of pretense or guile or rancor, who found great joy
in nature and people of all walks of life, Bob was a real champion. Bob may
have remained child-like for all of his long lifetime, but he was surely God’s
child. We all loved him and will miss him dearly. Good-bye, Dad.
Wednesday, January 11, 2017
Stuff I Read Last Year
I had the great fortune to have lots of time to read books
in 2016. So, in the tradition of other eminent authorities like The New York
Times, Amazon, and MAD Magazine, I thought it was incumbent
upon me to publish my “Best of 2016”. Also, I felt like writing another
blog post and I couldn’t think of anything else to say.
Way back last January I read Before The Fall, which I
thought was very well written, somewhat intriguing, and very apropos in regard
to the contemporary media environment. I gave it CCCC.
(Aren’t those icons pathetic? I’m still using Windows 2007.)
There are few things I love more than comic novels; heating
pads, maybe, or a big sloppy kiss from my dog. I read a couple of good ones
(comic novels) this year: Everybody’s Fool (CCCC1/2C)
and Kitchens of the Great Midwest (CCCC1/2C).
Kitchens is a send-up of food snobbery; the chapter about bars is a
classic. Fool is a sort-of sequel to Nobody’s Fool, both by
Richard Russo, one of my favorite writers. Both Fools are a hoot, and I
recommend these books highly if you’re seeking a chuckle or two.
(Random interjection: my two favorite comic novels are It
Won’t Always Be This Great, and The Financial Lives of the Poets
{don’t be put off by the title, it’s awesome}. I find few joys in life as
fulfilling as funny books).
I read lots of crime/mystery/suspense novels last year. The best one was The Trespasser, by Tana
French, a wonderful writer; I gave it CCCC. I
also liked Michael Connelly’s latest, whatever it’s called; I read all
of his books. Laura Lippman’s latest was also good. My new favorite
writer in this genre is Michael Robotham, and his book about the guy who
escapes prison the day before his sentence was up was excellent. I gave
these an aggregate of CCCCCCCCCCCCCCCCC;
I’ll let you figure out how to allocate them.
Still in the crime category, I read a noir book from around
1950 called Hell Hath No Fury that I really liked. You get 10 points if
you can define “noir” adequately without cheating. I gave it CCCC1/3C.
I started to read a Raymond Chandler but it was too clichéd for this cynic.
Last, and probably least, I liked Harlan Coben’s new book.
Harlan Coben is like Fig Newtons: tasty, familiar, and you can’t stop until
you’ve eaten the whole sleeve; CCCC.
I read lots of other thrillers, but they were mostly forgettable. Maybe they were wholly forgettable, since I can't remember them. I did not read any Lee Child/Jack Reacher books; they ruined
it when they agreed to cast Tom Cruise as Reacher in the movies. Ugh.
Sort of still in that crime category was a delightfully twisted
little book called You Will Know Me about a gymnastics team. A treat for
young and old alike, I gave it CCCC1/2C.
If you like dysfunctional families, and who doesn’t, The
Nest was good fun (CCCC). Also in the dysfunctional family vein, The Sport of Kings was quite a remarkable book. It reminded me of a trip to a great art gallery, or perhaps watching a foreign movie without translations: I felt like I was missing a lot of the best stuff, but it was an exhilarating ride anyway. I'll give it CCCC1/2C
Highly acclaimed works I started but discarded included The
Homecoming, The Nix, and LaRose. I actually liked LaRose, I’m
not sure why I quit reading it. Maybe The Caps were playing or something. I’ll
probably take it up again.
A couple of books I read back-to-back that turned out
to be companion pieces about women were My Name is Lucy Barton by Elizabeth Strout,
and This is Your Life Harriet (Somebody) by Jonathan Evison. I love
Elizabeth Strout’s books, and I like Evison a lot, too. CCCC1/2C
and CCC1/2C,
respectively. And, both authors have previous books that are even better, read them
all!
About the same time I was reading Homecoming I read Barkskins,
which was fun since both were about immigrants to The New World around the 18th
century. I finished Barkskins, mostly just to be able to say I finished
it. (No rating.) Not sure why I bother to mention it here.
I listened to The Vegetarian on tape. If You Will
Know Me was twisted, The Vegetarian was twisted-on-steroids. I know
it was profound, but I have no idea why; I gave it no rating, and I only
mention it here because it won The Man Booker Prize, and I’m quite the
book snob.
The Thicket was gory and sadistic, but also cute and
charming. I liked it; CCC1/2C.
Reminded me of another underrated book that I liked: The Sisters
Brothers. If you liked the movie Hell or High Water, you might like
these books.
Dodgers was pretty good. It’s his first book, and
he’s from Northern Virginia, so you should read it. CCC1/2C.
Allison liked it too, and since we sort of refuse to like the same books,
that’s a rare endorsement.
Last week I actually read a non-fiction book, Thank You
For Being Late. It’s supposed to an optimist’s look at the future, but I
thought it was terrifying. Of course, I think getting out of bed is terrifying.
(Isn’t it?) Anyway, it’s good book, I gave it CCCC1/2C.
OK, so here’s the grand finale. The two best books I read
last year I actually read in the last two weeks, which of course was not last
year. However, they were both ingenious, beautifully written, funny, wise,
entertaining, and in many ways astonishing; two of the best novels I have ever
read. Both by very accomplished authors, and in my mind, their greatest works.
Both about brilliant, iconoclastic men; and again, in a sense, companion works.
And so, the winners are, for best books of 2016…
Moonglow, by Michael Chabon
A Doubters Almanac, by Ethan Canin
They won’t be everyone’s cup of tea, but I loved them. And
after all, this is all about me. Though I hope I gave you some ideas of things
you might like. Feel free to contact me if you would like more recommendations
or details. Happy reading!
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